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Exploring Health Literacy: Web-based Genres in Disseminating Specialized Knowledge to Caregivers. The Case of Paediatric Neurological Disorders

Silvia Cavalieri, Giuliana Diani

Abstract


This paper aims at analyzing the discursive practices used in web-based informative materials in the specific context of a chronic disease, i.e. neurological disorders resulting in epilepsy, for liaising with caregivers of paediatric patients. The study centres on a corpus of webpages gathered from the websites of the major foundations dealing with paediatric neurological syndromes. From a methodological perspective, the study makes recourse to existing studies on the discursive practices that in the literature on knowledge dissemination are identified as being used to facilitate the layman’s access to specialized scientific knowledge. The overall results show that knowledge dissemination strategies used in the webpages under investigation offer cognitive tools to parents as caregivers in order to make them informed about their children’s disease. These webpages enhance caregiver health literacy and achieve the goal of caregiver empowerment, giving her/his greater control over decisions affecting her/his child’s health.


Keywords


caregivers; expert-to-lay communication; health literacy; specialized knowledge dissemination; web-based genres

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References


Bautista, Ramon Edmundo D., Elizabeth T. Glen, Namrata K. Shetty, and Peter Wludyka. 2009. “The Association between Health Literacy and Outcomes of Care among Epilepsy Patients”. Seizure 18 (6): 400-404. DOI:10.1016/j.seizure.2009.02.004

Bautista, Ramon Edmundo D., Denys Shapovalov, and Ali Reza Shoraka. 2015. “Factors Associated with Increased Felt Stigma among Individuals with Epilepsy”. Seizure 30: 106-112. DOI: https://doi.org/10.1016/j.seizure.2015.06.006

Bigi, Sarah, and Maria Grazia Rossi. 2015. “ICTs for the Medical Profession: An Application in Chronic Care”. Paper presented at ALAPP 2015, 5th International Conference on Applied Linguistics and Professional Practice ‘Language, discourse and action in professional practice’. Milan: Dipartimento di Scienze della Mediazione Linguistica e di Studi Interculturali.

Briones, Rowena. 2015. “Harnessing the Web: How E-Health and E-Health Literacy Impact Young Adults’ Perceptions of Online Health Information”. Medicine 2.0 4 (2): 111-118. DOI: 10.2196/med20.4327

Calsamiglia, Helena, and Teun A van Dijk. 2004. “Popularization Discourse and Knowledge about the Genome”. Discourse and Society 15 (4): 369-389. doi.org/10.1177/0957926504043705

Ciapuscio, Guiomar E. 2003. “Formulation and Reformulation Procedures in Verbal Interactions between Experts and (Semi)laypersons”. Discourse Studies 5 (2): 207-233. doi.org/10.1177/1461445603005002004

Dal Fovo, Eugenia. 2017. “Healthcare across Languages in Italy: A Case Study”. Lingue Culture Mediazioni – Languages Cultures Mediation (LCM Journal) 4 (1): 33-55. DOI: https://doi.org/10.7358/lcm-2017-001-dalf

Dixon-Woods, Mary. 2001. “Writing Wrongs? An Analysis of Published Discourses about the Use of Patient Information Leaflets”. Social Science & Medicine 52 (9): 1417-1432. http://dx.doi.org/10.1016/S0277-9536(00)00247-1

Dray, Susan, and Uta Papen. 2004. “Literacy and Health: Towards a Methodology for Investigating Patients’ Participation in Healthcare”. Journal of Applied Linguistics 1 (3): 311-332. DOI: 10.1558/japl.v1i3.311

Dynel, Marta. 2014. “Participation Framework Underlying YouTube Interaction”. Journal of Pragmatics 73: 37-52. https://doi.org/10.1016/j.pragma.2014.04.001

Elliott, John, and Bassel Shneker. 2008. “Patient, Caregiver, and Health Care Practitioner Knowledge of, Beliefs about, and Attitudes toward Epilepsy”. Epilepsy & Behavior 12 (4): 547-556. DOI: https://doi.org/10.1016/j.yebeh.2007.11.008

Eysenbach, Gunther, John Powell, Oliver Kuss, and E.P. Sâ. 2002. “Empirical Studies Assessing the Quality of Health Information for Consumers on the World Wide Web: A Systematic Review”. Journal of the American Medical Association 287 (20): 2691-2700. DOI:10.1001/jama.287.20.2691

Filippone, John D., Madeline Cafiero, Kathleen A. Kelly, and Cathleen M. Daley. 2013. “The Intersection of Knowledge Transfer and Health Literacy in Reducing Readmission Rates for Heart Failure”. Journal of Cardiac Failure 19 (8), S88. DOI: https://doi.org/10.1016/j.cardfail.2013.06.282

Garzone, Giuliana. 2006. Perspectives on ESP and Popularization. Milano: CUEM.

Garzone, Giuliana. 2007. “Genres, Multimodality and the World-Wide Web: Theoretical Issues”. In Multimodality in Corporate Communication. Web Genres and Discursive Identity, edited by Giuliana Garzone, Paola Catenaccio and Gina Poncini, 15-30. Milan: FrancoAngeli.

Gotti, Maurizio. 2013. “The Analysis of Popularization Discourse: Conceptual Changes and Methodological Evolutions”. In The Popularization of Specialized Discourse and Knowledge across Communities and Cultures, edited by Susan Kermas and Thomas Christiansen, 9-32. Bari: Edipuglia.

Grego, Kim, and Alessandra Vicentini. 2015. “English and Multilingual Communication in Lombardy’s Public Healthcare Websites”. In The Language of Medicine: Science, Practice and Academia, edited by Maurizio Gotti, Stefania M. Maci and Michele Sala, 255-275: Bergamo: CELSB.

Gülich, Elisabeth. 2003. “Conversational Techniques Used in Transferring Know¬ledge between Medical Experts and Non-experts”. Discourse Studies 5 (2): 235-263. https://doi.org/10.1177%2F1461445603005002005

Hawn, Charles. 2009. “Take Two Aspirin and Tweet Me in The Morning: How Twitter, Facebook, And Other Social Media Are Reshaping Health Care”. Health Affairs 28 (2): 361-368. DOI: 10.1377/hlthaff.28.2.361.

Ho, Anita. 2008. “Using Family Members as Interpreters in the Clinical Setting”. The Journal of Clinical Ethics 19 (3), 223-233.

Iedema, Rick. (ed) 2007. The Discourse of Hospital Communication: Tracing Complexities in Contemporary Health Organizations. Basingstoke: Palgrave Macmillan.

Jansson, Gunilla, and Cecilia Wadensjö. 2016. “Language Brokering in Multilingual Caregiving Settings”. Communication & Medicine: An Interdisciplinary Journal of Healthcare, Ethics and Society 13 (3): 277-290. DOI: 10.1558/cam.26400

Kalichman, Seth C., Eric Benotsch, Troy Suarez, Sheryl Catz, Jeff Miller, and David Rompa. 2000. “Health Literacy and Health-related Knowledge among Persons living with HIV/AIDS”. American Journal of Preventive Medicine 18 (4): 325-331. DOI: 10.1016/S0749-3797(00)00121-5

Luzón, Maria José. 2015. “Recontextualizing Expert Discourse in Weblogs: Strategies to Communicate Health Research to Experts and the Interested Public”. In Insights into Medical Communication, edited by Maurizio Gotti, Stefania Maci and Michele Sala, 331-352. Bern: Peter Lang.

Mancuso, Carol A., and Melina Rincon. 2006. “Impact of Health Literacy on Longitudinal Asthma Outcomes”. Journal of General Internal Medicine 21 (8): 813-817. DOI: 10.1111/j.1525-1497.2006.00528.x

Mattiello, Elisa. 2017. “The Popularisation of Science via TED Talks”. International Journal of Language Studies 11: 77-106.

Mattiello, Elisa. 2019. “A Corpus-based Analysis of Scientific TED Talks: Explaining Cancer-related Topics to Non-experts”. Discourse, Context & Media 28: 60-68. https://doi.org/10.1016/j.dcm.2018.09.004

Mazzi, Davide. 2018. “‘The diet is not suitable for all...’: On the British and Irish Web-based Discourse on the Ketogenic Diet”. Lingue Culture Mediazioni – Languages Cultures Mediation (LCM Journal) 5 (1): 37-56. DOI: http://dx.doi.org/10.7358/lcm-2018-001-mazz

Molina, Luis. 2001. “Readability of Education Materials and Informed Consent Forms for Women Seeking Surgical Sterilization”. International Journal of Gynecology & Obstetrics 73 (2): 177-178. https://doi.org/10.1016/S0020-7292(00)00334-9

Muñoz-Miquel, Ana. 2012. “From the Original Article to the Summary for Patients: Reformulation Procedures in Intralingual Translation”. Linguistica Antverpiensia 11: 187-206.

Nicholas, David, Paul Huntington, Peter Williams, and Pam Vickery. 2001. “Health Information: An Evaluation of the Use of Touch Screen Kiosks in Two Hospitals”. Health Information & Libraries Journal 18 (4): 213-219. https://doi.org/10.1046/j.1471-1842.2001.00345.x

Schillinger, Dean, Kevin Grumbach, and John Piette. 2002. “Association of Health Literacy with Diabetes Outcomes”. Journal of the American Medical Association 288 (4): 475-482. doi:10.1001/jama.288.4.475

Slade, Diana, Hermine Scheeres, Marie Manidis, Rick Iedema, Roger Dunston, Jane Stein-Parbury, Christian Matthiessen, Maria Herke, Jeannette McGregor. 2008. “Emergency Communication: The Discursive Challenges Facing Emergency Clinicians and Patients in Hospital Emergency Departments”. Discourse & Communication 2 (3): 271-298. DOI: 10.1177/1750481308091910

Smart, James M., and David Burling. 2001. “Radiology and the Internet: A Systematic Review of Patient Information Resources”. Clinical Radiology 56 (11): 867-870. https://doi.org/10.1053/crad.2001.0738

Tessuto, Girolamo. 2015. “Empowering Patients to Self-care in Web-mediated Communication: A Multimodal Discourse Analysis”. In Insights into Medical Communication, edited by Maurizio Gotti, Stefania Maci and Michele Sala, 213-246. Bern: Peter Lang.

Turnbull, Judith. 2015. “Living with Diabetes: The Discourse of Medical Informa¬tion on the Internet for Young People”. In Insights into Medical Communication, edited by Maurizio Gotti, Stefania Maci and Michele Sala, 247-268. Bern: Peter Lang.

Turnbull, Judith. 2016. “Knowledge Dissemination Online: The Case of Health Information”. In Discourse In and Through the Media. Recontextualizing and Reconceptualzing Expert Discourse, edited by Marina Bondi, Silvia Cacchiani and Davide Mazzi, 290-314. Newcastle upon Tyne: Cambridge Scholars Publishing.

Vicentini, Alessandra. 2012. “Institutional Healthcare E-Brochures and Multilingualism Issues in the Recent Immigration Era in Italy (2007-2010)”. In Discourse In and Through the Media. Recontextualizing and Reconceptualzing Expert Discourse, edited by Sandra Campagna, Giuliana Garzone and Cornelia Ilie, 53-76. Bern: Peter Lang.

Wolf, Michael S., Ruth M. Parker, and Scott C. Ratzan. 2008. “Literacy and Public Health”. International Encyclopedia of Public Health, 98-104. Oxford: Elsevier.




DOI: https://doi.org/10.7358/lcm-2019-001-cadi

Copyright (©) 2019 Giuliana Diani – Editorial format and Graphical layout: copyright (©) LED Edizioni Universitarie




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Lingue Culture Mediazioni - Languages Cultures Mediation
Registered by Tribunale di Milano (27/11/2013 n. 380)
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Dipartimento di Lingue, Letterature, Culture e Mediazioni  
Università degli Studi di Milano


Editors-in-Chief: Paola Catenaccio (Università degli Studi di Milano) - Giuliana Garzone (IULM, Milano)
Editorial Board: Marina Brambilla (Università degli Studi di Milano) - Maria Vittoria Calvi (Università degli Studi di Milano) -  Lidia Anna De Michelis (Università degli Studi di Milano) - Giovanni Garofalo (Università degli Studi di Bergamo) - Dino Gavinelli (Università degli Studi di Milano) - Antonella Ghersetti (Università di Venezia Ca’ Foscari) - Maria Grazia Guido (Università del Salento) - Elena Liverani (IULM, Milano) - Stefania Maci (Università degli Studi di Bergamo) - Andrea Maurizi (Università degli Studi di Milano Bicocca) - Chiara Molinari (Università degli Studi di Milano) - Stefano Ondelli (Università degli Studi di Trieste) - Davide Papotti (Università degli Studi di Parma) - Francesca Santulli (Università di Venezia Ca’ Foscari) - Girolamo Tessuto (Università degli Studi della Campania Luigi Vanvitelli) - Giovanni Turchetta (Università degli Studi di Milano) - Stefano Vicari (Università degli Studi di Genova)
International Scientific Committee: James Archibald (McGill University, Montreal) - Natalija G. Bragina (Institut Russkogo Jazyka im. A.S. Puškina; RSUH, Mosca) - Kristen Brustad (University of Texas at Austin) - Luciano Curreri (University of Liège) - Hugo de Burgh (University of Westminster) - Giuditta Caliendo (Université de Lille) - Giorgio Fabio Colombo (Nagoya University Graduate School of Law) - Daniel Dejica (Universitatea Politehnica Timisoara) - Anna De Fina (Georgetown University, USA) - Claudio Di Meola, (Sapienza Università di Roma) - Denis Ferraris (Sorbonne Nouvelle, Paris) - Lawrence Grossberg (University of North Carolina at Chapel Hill) - Stephen Gundle (University of Warwick) - Décio de Alencar Guzmán (Universidade Federal do Pará, Belém,  Brasile) - Matthias Heinz (Universität Salzburg) - Rosina Márquez-Reiter (The Open University) - Samir Marzouki (Université de Manouba à Tunis) - (John McLeod, University of Leeds) - Estrella Montolío Durán (Universitat de Barcelona) - M'bare N'gom (Morgan State University, Baltimore) - Christiane Nord (Magdeburg-Stendal University of Applied Sciences) - Daragh O'Connell (Cork University) - Roberto Perin (York University, Toronto) - Giovanni Rovere (Ruprecht-Karls-Universität Heidelberg) - Lara Ryazanova-Clarke (University of Edinburgh) - Françoise Sabban (École des Hautes Études en Sciences Sociales, Paris) - Kirk St.Amant (Louisiana Tech University, University of Limerick/University of Strasbourg) - Paul Sambre (Katholieke Universiteit Leuven) - Srikant Sarangi (Aalborg University) - Junji Tsuchiya (Waseda University, Tokyo) - Xu Shi (Zhejiang University)
Section editors: Maria Matilde Benzoni, Università degli Studi di Milano (Modern history) - Paola Cotta Ramusino, Università degli Studi di Milano (Russian linguistics and translation) - Mario de Benedittis, Università degli Studi di Milano (Sociology) - Kim Grego Università degli Studi di Milano (English linguistics and translation) - Giovanna Mapelli, Università degli Studi di Milano (Spanish linguistics and translation) - Bettina Mottura, University of Milan (Chinese studies) - Mauro Giacomo Novelli, Università degli Studi di Milano (Contemporary Italian literature and culture) - Letizia Osti, Università degli Studi di Milano (Arab studies) - Maria Cristina Paganoni, Università degli Studi di Milano (English linguistics and translation) - Giuseppe Sergio, Università degli Studi di Milano (Italian linguistics) - Virginia Sica, Università degli Studi di Milano (Japanese studies)


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